People with ALS Needed for a Research Study on Quality of Life
 Researchers at Penn State College of Medicine are seeking participants with ALS for a research study on why individuals access a multidisciplinary clinic versus receiving traditional practitioner care. Participants will also be asked questions about quality of life and problem solving skills. The purpose of the study is to better understand the quality of life and problem solving skills of patients with ALS who attend multidisciplinary clinics versus those who do not. Participants will complete a questionnaire (online or with a paper and pencil version) that asks questions about physical health status, quality of life, social problem solving skills, and use of medical services for care of ALS.
Survey responses are confidential.
To access the online questionnaire, go to the Penn State Hershey ALS Clinic Website and click on the link “ALS Patients: Click here to participate in a research survey.”
For more information or to request a paper copy of the questionnaire, contact the study coordinator, Beth Stephens, at (717) 531-0003, extension 283395, or by email at hstephens1@psu.edu. The study director is Zachary Simmons, MD, Department of Neurology, Penn State College of Medicine.
This research study has been approved by the Institutional Review Board, under federal regulations, at Penn State College of Medicine, Penn State Hershey Medical Center. | |
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The ALS Association Central and Southern Ohio Chapter
