There are many reasons why I walk but a very special reason is to support the organization that makes such a difference in my life: the Central and Southern Ohio Chapter.
I was diagnosed in the spring of 2013 when we were living in beautiful, historic Savannah. We loved Savannah but medical care for ALS meant driving to Charleston, Atlanta, or Jacksonville. Early on we decided to move back to Cincinnati to be near my son and his family.
I emailed the local chapter of the ALS Association to ask about resources. There was a quick response from someone named "Pinky"...followed by a large envelope of ALS brochures and literature... followed by phone calls to assure me that excellent medical care was available in the Queen City. She told me about the young doctor who specialized in ALS and the clinic he had recently started.
At that time we were months away from moving. We still had a condo to renovate and a house to sell. When I finally gave Pinky a moving date she went right to work. Two weeks after arrival in Cincinnati I had an appointment with Dr. Neel. And, a week after that I attended my first clinic.
I was apprehensive about my first Support Group meeting but everyone was really friendly and upbeat. Pinky and Lindsey and Mary always make sure that everyone feels welcome and comfortable. Yes, there are occasional tears, but there are also hugs and good advice from this very uplifting group.
That special personal touch is apparent everywhere in the local chapter, from support group, to loan closet, to good old fashioned hand holding. Pinky and the staff make our lives better every day!